The Number 18: Happy Birthday to Lillian Darnell

The Number 18

Today is your 18th Birthday.
Lillian Paige Darnell is 18 years old today.

I can still see you in my mind’s eye
as a wee lil 4 pound sweetheart
as I wondered and dreamed
about your journey to adulthood.

Wow! Did we take giant
twist and turns,
paths less traveled.

Little did I know as I snuggled
you close, sang to you (sorry about that),
and read, read, read to you;
that the number 18 would come
to be a powerful number for you,
for us, in more ways than we could imagine.

When you were 3 years old,
As we sat eating dinner,
As the phone rang,
As the pediatrician delivered
news – 18p- she said,
missing the short arm of
chromosome 18, she said –
that rendered me speechless,
with tears sliding down my face
into a dinner I could no longer eat.

Little did I know at the time
that this was not the horrible
news I assumed it to be.

Oh yes. Life changing, for sure.
Yet, not in the way my mind
led me to believe in those first few weeks.

There is no way on this Earth
I could have foreseen how
life changing this would be for me.

Life changing for me so as to
let you be who you came here to be.
For that to happen unconditionally
and organically, I had much learning to do.

Not just learning about genetics,
chromosomes, DNA,
and the effects of deletions of genes.
That was the small stuff compared to
the enormity of the path that lie ahead.

As you step into adulthood on this day
It is my deepest hope that
I have made more decisions for
the highest good, than not.

It is my deepest hope that the times when I have
remembered to share and be unconditional love
stand out and far outweigh the times when
I have not been at my best.

May the wishes you wish come true.
May the dreams you dream become reality.
May the sunshine light your way ever more.
May the moon teach you it’s secrets.
May the birdsong always sing sweet melodies to your heart.

May you step into adulthood
with iridescent rose gold fairy
wings of the highest and brightest
as you take flight on the next
greatest adventure of your life.

I love you
I honor you
I respect you
I am grateful for all that you
have taught and continue to teach me.

You are You
And You Are Perfect!

Love,
Camilla
Mom

Lillian put together 18 wishes for her 18th birthday; which she shared in the live facebook celebration.

Here they are ….

1. I wish Macy, Lauren, Kaitlin Baker, and Rebecca could come to Reno, NV.
2. I wish to be able to drink out of a cup/glass without a straw.
3. I wish to be fearless.
4. I wish for infinity art and crafts supplies.
5. I wish for infinity clothing.
6. I wish to be able to travel around the world with my friends and/or by myself.
7. I wish for the Earth to be healthy again.
8. I wish for the Earth not to die.
9. I wish to be less picky.
10. I wish to live with my friends.
11. I wish to be less vulnerable to spicy hot stuff.
12. I wish to have a dream home.
13. I wish to have a dream vehicle.
14. I wish to see Hawaii.
15. I wish to go to Florida.
16. I wish to have infinity photography supplies.
17. I wish to have more friends.
18. I wish to have two beds.

We celebrated all week as Lillian had a long list of things she wanted to do. It was a full week of shopping for new fairy wings, going for walks in her favorite places, going swimming, eating fries and desert at her favorite place, having dinner with The Romano Duo (grandparents), and ending with a live facebook celebration.

Blessings,
Camilla
See It. Share It. BE IT … Spread Love Everywhere You Go!

Coming Soon!! “Words of Alchemy” is the latest book coming to life! Coming Fall 2019.

Amazing news! My 17 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here

Wonderfully exciting news! My 13 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.

Keep Believing – Adventure is Always There

Dear Lillian,

I am proud of you.
I love you.

You did it
You continue to do it.

You shine that bright sparkling smile
Upon all who’s eyes you meet.

You did it!
From high school
You have Graduated!

You, we, did it different.
And, that is okay.
In fact, it is perfect for we.

Not everyone is meant
to do life as it has always been done.

This is what creates
the rich and vibrant soup
of human life.

There are those who follow the path
of doing it different.
There are those who follow the path
of the way it’s always been done.
No path is better than the other.
Whether the same path as another is
followed or a different path is followed.

The paths are equal.
Yet the benefit to humanity
is vast in the variety
and depth of ideas,
the dynamic expressions,
that bloom when each of us
travels the path of our hearts.

You continue each day
in the face of chronic pain,
communication challenges,
depth perception and balance difficulties,
fine and gross motor awkwardness,
emotional struggles,
indecision worries,

You continue each day
with that bright sparkling smile.

You continue each day
Knowing what you want in this life
Knowing what you want to achieve
Knowing how you want to live

You continue each day
meeting all that life has put forth for you.

I honor you.
I honor and support the fierce
warrior within you who
knows her heart’s desire.

I honor you.
I am proud of you.
I love you.

YOU DID IT!

Happy Graduation to YOU!!

Love,
Camilla
Mom

Blessings,
Camilla
See It. Share It. BE IT … Spread Love Everywhere You Go!

Coming Soon!! “Words of Alchemy” is the latest book coming to life! Coming Fall 2019.

Amazing news! My 17 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here

Wonderfully exciting news! My 13 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.

Peaceful Summer by Lillian Darnell – Poetry for Fundraising

Peaceful Summer by Lillian Darnell …. There’s still time to participate in Lillian’s fundraiser and get a custom poem created especially for you .. This one was created for a lovely supporter in Tasmania.

Here’s the beautiful comment from Patricia once she received her custom poem …

Dear Camilla and Lillian

Thank you! The poem is everything I hoped for and more, and paints a brilliant word-picture. I look forward v. much to seeing the image, and know it, too, will be special.

As we approach Winter Solstice here in the Southern Hemisphere, it’s particularly lovely to be reminded of the pleasures and promise of summer.

Peace.
Patricia

The donation amount is completely up to you. Go here to read why Lillian is fundraising and also if you’d like a custom poem of your own.

http://lilliandarnell.com/2019/03/27/fundraising-for-the-2019-chromosome-18-family-conference-poem-creativity/

Blessings,
Camilla
See It. Share It. BE IT … Spread Love Everywhere You Go!

Coming Soon!! “Words of Alchemy” is the latest book coming to life! Shooting for near the end of July 2019 for publication date.

Amazing news! My 17 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here.

Wonderfully exciting news! My 13 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.

Go here to see latest soul writings. xoxo

 

The Magic She Carries in Her Heart – Book Review of Where Would You Fly

Lillian and I are deeply grateful for this wonderful, heartfelt and thorough review … So lovely that my eyes pooled with liquid gratitude when I read it last night. Thank you Katie!! 💜💜💜


(Lillian at the Barnes & Noble book signing in November 2018)

Excerpt from the review ….

” …. I also loved the beautiful drawing and photos of Lillian and her family. This really made the book feel even more special. I also think reading about how special Lillian is can only make you feel blessed to be able to see the magic she carries in her mind and heart …. ”

Please visit the below link to read more and if you feel moved, we would be incredibly grateful for you to “like” the post and/or comment.

My Review of Where Would You Fly?: and Other Magical Stories Author Lillian Darnell

Blessings,
Camilla
See It. Share It. BE IT … Spread Love Everywhere You Go!

Amazing news! My 17 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here.

Wonderfully exciting news! My 13 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.

Go here to see latest soul writings. xoxo

 

Latest News: Help Spread the Word for Lillian Darnell’s Fundraiser

Want to help spread the word for my special needs daughter, Lillian? She is fundraising to help pay for our attendance at the annual Chromosome 18 conference this July in Colorado Springs.

Who wouldn’t love a custom poem created just for them? That’s exactly what Lillian is offering for her fundraising efforts. Lillian is a natural poet and loves writing poetry.

For anyone new here, Lillian Darnell is my 17 year old special needs daughter. Her condition is called 18p- as she is missing the short arm of Chromosome #18. We attend a yearly conference every summer specific to her condition. She is adamant every year that she help raise money for us to attend as it’s darn expensive for a family of 3.


(Group Photo from the 2018 Conference in Baltimore)

The poems will be nature themed, fairy themed, mermaid themed, or unicorn themed. Every poem created will be different and uniquely yours!

Please feel free to share this post with others who appreciate poetry and love supporting artists and fundraisers!

Sample poem above … Oceans of gratitude and LOVE! Visit the link below to learn more about this from Lillian …

Fundraising for the 2019 Chromosome 18 Family Conference – Poem Creativity

Blessings,
Camilla
See It. Share It. BE IT … Spread Love Everywhere You Go!

Amazing news! My 17 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here.

Wonderfully exciting news! My 13 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.

Go here to see latest soul writings. xoxo

 

Poetry: The Long Weekend

On January 17 2019, Lillian Darnell left for another long weekend with The Romano Duo (grandparents) ….

I look forward to these days of respite.
She looks forward to them.
Yet, every time she leaves to spend days away,
My heart is surrounded by a tingling sadness.

It’s such an interesting feeling.
When tingling sadness dances with peaceful contentment.
They pair well.
Sharing wisdom and shedding Light.

I take the hand of tingling sadness and peaceful contentment.
We embrace and dance to the tune of an old and worn knowing.

And the small, barely there rain drops fall
to slowly make disappear her foot prints,
as she joyfully leaves me.

Loving this dance with life
Living this dance with life
What a Life!
Hey, come and get it
Keep it coming,
Get your dance card and let’s dance.
-©2019 Camilla Downs

Blessings,
Camilla
See It. Share It. BE IT … Spread Love Everywhere You Go!

Amazing news! My 17 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” is arriving January 2018. Learn more and order here.

Wonderfully exciting news! My 13 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.

Go here to see latest soul writings. xoxo