2024 Chromosome 18 Conference – Charlotte, North Carolina

July 6 2024

3:00 am, home to the airport, then to Phoenix, now to Charlotte. Imma need a massage when we arrive. 🤪

July 6 2024

After a most unfun travel experiences we finally arrived at 4:30 pm EST yesterday. With sweat dripping down my back waiting for the hotel shuttle at the airport, a different hotel shuttle gave us a lift, as ours seemed to be invisible. 😝 That man was a savior, after having left this heat and humidity in 1990, I cannot do it anymore. Feels like I’m suffocating. 🥵

At the Reno airport as we were headed through pre-check, it was discovered that I put Thomas’s year of birth for Lillian’s on her reservation. Damn. 🤪 Had to go back to ticketing to get that fixed. Both of our flights left and arrived on time. So that was great! 🎉

The friends are reunited!! Love these ladies!!

Thomas and I had a delicious, filling dinner after having gone all day with no meals.
After that the hugs, smiles, and laughter began, and continued until 10:30. Ready for another fun, hug-filled day!! ❤️❤️❤️

July 7 2024

Day 1: More conversations, more fun, more laughter, more joy, more happiness. ❤️

Plus, a performance by the Bouncing Bulldogs Jump Rope Team. 🙌

July 8 2024

Day 2: Good times! 🎉💖🎉

July 9 2024

Day 3 began with fire alarms and a full hotel evacuation. I had to go retrieve Lillian from the room, exiting with her being barefoot in her nightgown. 😱

Then parent panel, where sibs got to ask questions of a few of us parents. Later was ladies night and a luau for the self-advocates.

Fun times!! 🎉🎉🎉


July 10 2024

Day 5: Sibling and self-advocate panel, group photos, and Starfish Dinner & Dance. 🎉❤️🎉

Rick Guidotti’s of Positive Exposure’s photos:

 

 

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