My 14 year old daughter, Lillian, has a genetic deletion called 18p-. She is missing the short arm of her 18th chromosome. Fortunately, there is an organization called The Chromosome 18 Registry & Research Society. They’ve created a portal for … Continue reading
(Thank you Steve Marshall for the picture of our sign!) 20th Annual Chromosome 18 Registry Family Conference News & Recognition Positive Exposure Research Updates Syndrome Breakout Groups Self Advocate/Sibling Mixer Moms’ Night Out Special Needs Planning Program Yoga Interactive Session … Continue reading
(Team TLC at 30,000 feet up somewhere between Reno and Las Vegas) Well, almost! Buses, Planes and Automobiles! That’s how we got from Reno, Nevada to Savannah, Georgia for the 20th Annual Chromosome 18 Conference. Southwest Airlines does not fly … Continue reading
Team TLC returned from the Chromosome 18 Conference on Friday, August 2, 2013. It was a great and heart warming experience for all three of us. First, and most importantly, I have overflowing gratitude for the people in our lives … Continue reading
Why does this matter so much? I’ve been carrying on a great deal about the upcoming Chromosome 18 Conference this July in Savannah, Georgia, thought I’d take a minute to touch on why this is so important to us. A … Continue reading
Another summer and another Chromosome 18 Conference has come to an end. Another journey of adventures with crazy luggage, stairs, peaceful strolls along the Riverwalk, laughter, tears and …. magical moments. A journey to a place where not everyone knows … Continue reading
November 10 2024 Passport application turned in, fees paid. We’re set for the C18 conference in Niagara Falls next summer. 🎉🎉🎉
Whispers of a Wild Summer Trip (Written to be read as Spoken Word poetry) This was a case of Don’t think, just do it I thought about it just enough to know That this would be an opportunity To walk … Continue reading
July 13 2024 Still recovering from the C18 conference, but I could not miss the chance to meet up with Michelle before she heads back to Philly. @mixed_asian_mama_ I enjoyed our dinner and chat last night! Safe travels back home … Continue reading
July 5 2024 Running our last minute errands before heading to the C18 conference tomorrow. 🎉❤️🎉