Tonight we celebrate (with sparkling pink lemonade)! After 8 years, a chapter of our lives full of struggle and worry has come to an end. That’s one damn long chapter!
Hallelujah, Wahooooo, YES!! WooooHoooo ….
And, I’m Still Standing …
I pray to never relive that chapter!!!
Check out that cloud from a couple of hours ago.
**November 15 2021 Update** – I remember this like it was yesterday! This was the day I received my first payment as being Lillian’s Shared Living Provider. The first step in crawling out of survival mode. I remain incredibly grateful and blessed that this is available to us.
Blessings,
Camilla See It. Share It. BE IT … Spread Love Everywhere You Go!
“Words of Alchemy”, published December 2019, is a free-verse poetry memoir covering the last 6 years of my life. The poetry of nature, the poetry of healing, the poetry of appreciation, the poetry of love, in one beautiful book.
Amazing news! My 20 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here.
Wonderfully exciting news! My 16 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.
I don’t know that I have a true phobia. There are things I do not like, but will handle, if need be: Heights, Claustrophobia, and I do not like tightly packed crowds of people at events. I used to have a phobia of bees, but have somewhat brought that down to manageable. I was stung way too many times as a child, one time directly on my lip! Ouch! We tolerate one another now. 😂
I do NOT like crowded places. Which is why when my kids were younger, we switched to doing our fun things and shopping during the week, rather than the weekend. I didn’t mean for it to rub off, but neither of my kids like crowds either. It’s too much sensory input. 😂
Been exploring this all afternoon. Mainly for Thomas. I’ll explore mine and Lillian’s after I’m finished with his. Deeply interesting, and fun! If you’re familiar with Human Design, what’s yours?
Thomas: Projector with a 4/6 profile and Spleen Authority.
Lillian: Manifesting Generator with a 6/2 profile and Emotions Authority.
Camilla: Generator with a 2/5 profile and Emotions Authority.
If you’re familiar with Human Design, and familiar with us, what do you think? Sound like us?
I spent almost 2 days putting together a report for Thomas, with all of his information. Whew!
I’m looking forward to my role as 18p- coordinator. My name is Camilla Downs (pronounced like Pamela, but with a “C”), and I’m mom to 20 year old Lillian Darnell and 16 year old Thomas Darnell.
Lillian has 18p-, being diagnosed when she was 3 years old after the pediatrician suggested genetic testing, due to Lillian being behind in more than three areas of development. The pediatrician called me as soon as she got the results, letting me know over the phone, rather than postponing until we could get in to see her. After pulling myself together, I found the Chromosome 18 Registry that night while searching online. This was before facebook, and social media groups, and I joined The Registry shortly thereafter. I spent time observing the conversations in the Yahoo listserv before jumping in, introducing myself, and asking questions.
The main ways 18p- has manifested throughout the years for Lillian are speech difficulties, chronic stomach pain, proprioceptive issues, balance and depth perception, difficulties with executive functioning skills, and inability to process emotions. In hindsight, I can see she exhibits many symptoms of autism. That is currently being addressed. In the past she has done speech, physical, and occupational therapy. Currently, she receives craniosacral therapy, and just began seeing a therapist to begin work on her phobias. All of these issues are still with her.
I divorced in 2007, moving to Reno, Nevada from Tacoma, Washington. (Hey single parents out there. I see YOU!!) We’ve attended the yearly Chromosome 18 Conference since 2009, when it was in Las Vegas. It was so close, within driving distance, I just had to go check it out (Vegas is an 8 hour drive south of Reno). I was hooked, and we haven’t missed a conference since then.
The Registry has been deeply meaningful to us, by way of education, resources, research, and friendships with others who help us to know we are not alone. Thomas participates in the sibling track, and sibling events in between conferences. He also attends our local Sibshops events, and is in training to become a Sibshop Leader. Lillian’s closest and dearest friends are her 18p- friends, met at conference. They stay connected throughout the year via social media, texting and video chats.
(Thomas July 2021)
In honesty, Thomas and Lillian have a strained relationship. Thomas discusses this with his therapist, among other topics, and Lillian has been discussing it with her therapist. I am hopeful that with time and understanding they can move through this current phase.
I was a paralegal for ten years before Lillian was born, ending my career as a paralegal in the Civil Division of the Pierce County Prosecutor’s Office in Tacoma, Washington in 2001. After that, my husband and I co-owned a construction company.
After divorcing in 2007, and moving to Reno, I taught myself everything to know about blogs, blogging, and social media. I became a Social Media consultant to local businesses, teaching a couple of times at UNR’s Extended Studies. After tiring of doing this, I became certified as a Coach to assist special needs families, and published my first book, D iz for Different – One Woman’s Journey to Acceptance. In addition, I became certified as a Reiki Master.
I then moved on to substitute teaching at my kids Montessori school for 3 years. When they both moved to homeschooling, I shifted to becoming my community’s go to pet sitter, and dog walker. We moved from that community in late 2019, and in February 2020 I officially became a Shared Living Provider/Host Home Provider for Lillian (meaning that I get paid). I also manage and facilitate a venue that interviews authors around the globe, MeetingtheAuthors.com.
(All Team TLC Books to date)
Lillian’s book, Where Would You Fly and Other Magical Stories, was published in 2018. Thomas’s book, Biggest Little Photographer, was published in 2016. And, my latest book, Words of Alchemy, was published in 2019. Lillian also has an etsy shop with her artwork for sale – https://www.etsy.com/shop/LilliansImaginarium.
(Lillian when she received her proof book 2018)
Lillian graduated in June 2018. Thomas is in between what is traditionally the 10th and 11th grade. These days I spend a great deal of time advocating for the two of them, putting great amounts of time into researching and educating myself. Thomas has just recently been diagnosed with depression, anxiety, and autism. Lillian is due to be tested for autism in January 2022, which I am pursuing so that she can have access to certain therapies.
(Lillian high school graduation May 2019)
Please reach out to me any time. I’m ready to do what I can.
Blessings,
Camilla See It. Share It. BE IT … Spread Love Everywhere You Go!
“Words of Alchemy”, published December 2019, is a free-verse poetry memoir covering the last 6 years of my life. The poetry of nature, the poetry of healing, the poetry of appreciation, the poetry of love, in one beautiful book.
Amazing news! My 20 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here.
Wonderfully exciting news! My 15 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.
I’m a member of an author/book reader facebook group, and the admins ask great questions. I decided to turn some of the questions into a “get to know me” series. I would also love to hear your answers to the questions posed in the series. Thanks Helen for asking such fun questions!
What’s one thing that can instantly make your day better?
A hug from my son, when either of my kids is happy and joyful, sunshine, a walk, music, birdsong, cute animal videos, receiving a wonderful review or feedback for any of our books.
What about you?
Blessings,
Camilla See It. Share It. BE IT … Spread Love Everywhere You Go!
“Words of Alchemy”, published December 2019, is a free-verse poetry memoir covering the last 6 years of my life. The poetry of nature, the poetry of healing, the poetry of appreciation, the poetry of love, in one beautiful book.
Amazing news! My 20 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here.
Wonderfully exciting news! My 15 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.
Today was the Lillian and Camilla January 2021 Date Day
We had fries from Noble Pie Parlor or lunch. Their fries are THE BEST!! Plus, they have a vegan option!! Forgot to take a photo of the fries! We ate them too fast!
Later we drove to pick out a dessert. Vanilla macaroon for Lillian and blueberry scone for me. The scone is incredibly delicious.
We ended with a stop at the library. Even though it’s still closed, Lillian wanted to spend a few minutes in the garden behind it. We’ve frequented that little garden since she was 5 years old. It was bitterly cold as we’ve got warnings of a blizzard approaching, so we didn’t stay long.
To see the original post, and more photos, go here …
Blessings,
Camilla See It. Share It. BE IT … Spread Love Everywhere You Go!
“Words of Alchemy”, published December 2019, is a free-verse poetry memoir covering the last 6 years of my life. The poetry of nature, the poetry of healing, the poetry of appreciation, the poetry of love, in one beautiful book.
Amazing news! My 20 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here.
Wonderfully exciting news! My 15 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.
I’m a member of an author/book reader facebook group, and the admins ask great questions. I decided to turn some of the questions into a “get to know me” series. I would also love to hear your answers to the questions posed in the series. Thanks Helen for asking such fun questions!
Did you have an imaginary friend as a child?
I didn’t have an imaginary friend, but my cousins and I would pretend the bottom of the deep end of the pool (9 ft) was our house. We’d swim to the bottom, sit in different spots, pretend we were doing things. Wild to think about now. We spent a lot of time swimming, so we could hold our breath a decent amount of time.
When my 19 year old special needs daughter was younger, she used to have an imaginary twin. When she would get admonished for something, she would always say, it wasn’t me. That was the other Lillian. 🤣 😂
She also used to sleep walk. She woke me up one night as she was in my closet, having a conversation with someone. That happened several times throughout her younger years.
What about you?
Blessings,
Camilla See It. Share It. BE IT … Spread Love Everywhere You Go!
“Words of Alchemy”, published December 2019, is a free-verse poetry memoir covering the last 6 years of my life. The poetry of nature, the poetry of healing, the poetry of appreciation, the poetry of love, in one beautiful book.
Amazing news! My 19 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here.
Wonderfully exciting news! My 15 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.
Thank you to Chantelle Atkins for this lovely, glowing review for Words of Alchemy!
I found this to be a very enjoyable and soothing read and would recommend it to anyone who feels the need to dip out of this busy life for a while and lose themselves in words and imagery. The author does a fantastic job of penning poems that are thought provoking but ultimately calming. I read this in a few sittings and came away feeling soothed and replenished each time. I particularly liked the different topics tackled, such as parenting, healing and nature, and I really feel there is something for everyone in this collection. – Chantelle Atkins
You can learn more about Words of Alchemy by going here …
Blessings,
Camilla See It. Share It. BE IT … Spread Love Everywhere You Go!
“Words of Alchemy”, published December 2019, is a free-verse poetry memoir covering the last 6 years of my life. The poetry of nature, the poetry of healing, the poetry of appreciation, the poetry of love, in one beautiful book.
Amazing news! My 19 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here.
Wonderfully exciting news! My 15 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.
