November 19 2023
Almost daily Lillian tells me I’m weird. I respond by thanking her for noticing. 😂💋🤣
**THROWBACK POST**
Date day with Thomas … 1st stop Grassroots Books with 12 bags of books to turn in! Second stop ……. The Barber Shop! He can see again! Thanks Frank for springing for the much needed haircut!
Next stop on the date ….. YUMMY FOOD! We shared bread pudding … oh my good grief!!! So good we looked like a couple of pigs at feeding time!
Next stop on our date …. Window shopping! We looked at every single lego set in Toys r Us and left a fun message on a whiteboard! Woooohooooo!
Last stop on our date …. saved the best for last! Beautiful, magnificent, awesome …. NATURE = LOVE!
November 16 2023
There’s no stopping her now! Abdominal ultrasound slayed. Labs from two weeks ago are fine. GI next week, with more labs, and another (different) ultrasound to follow. We are gonna figure out what’s going on so Lillian can fully enjoy this life! I’m just so thrilled Lillian is ready to do this! ❤️🎉❤️
**THROWBACK POST**
October 24 2014:
Thomas is spending the night with the Romano Duo so Lillian and I get to have a day and a half long date. Started with a late afternoon walk.
First up on the October 2014 Lillian n Camilla date … Appetizers of tater tots and fries from Sonic and then a main course of homemade nachos!
We decided that the rest of the date would just be hanging out together and reading before heading to the Romano Casa for dinner and to retrieve Team Member T! We stopped by one of our favorite used book stores and it’s not there anymore!
November 12 2023
Chad Basil the First appreciation post.
We love you, Basil! Totally not a lap kitty, but he tolerates us. Plus Basil loves to be petted. We get a kick out the varied and funny noises he makes. There’s the I found a bug noise, the Thomas is awake noise, the noise accompanying a big stretch, and the I see a bird noise. Love my grand kitty to pieces! 🖤🐾🖤
November 11 2023
It’s not until the 13th, but we had our Team TLC-Roman Duo Celebration today. We had pizza and wings and Thomas chose a chocolate covered neapolitan cheesecake. Delicious!!!
Happy 18th Birthday to this amazing, wonderful, love-filled child of mine.
My favorite memory with Thomas:
It’s impossible for me to choose just one memory. My favorite times with Thomas have been when we have our once-a-month date days, going for walks in different places, going out to eat, going to the library, and window shopping at the pet stores and bookstores. I cherish the memories of our bi-weekly library trips. We had so much fun, making ordinary events into adventures.
Here’s a memory that stands out. When Thomas was about 12-years-old, we were on a walk. It has recently rained and a worm was crossing the sidewalk. Thomas gently scooped the worm, moving them to the other side so they wouldn’t get squished by walkers.
Being Thomas’s mom has absolutely changed my life. I often hear people say that their kids changed their lives. When I say it, I mean, it absolutely freaking changed my life drastically. I held many judgments against others, some I was not even aware of. Having Thomas in my life, made me aware of this, and also helped me to have empathy and compassion for others.
My favorite thing about Thomas. I can’t possibly choose one. I love Thomas’s sense of humor. They make me laugh so much, and I have a great time when we engage in conversation. We have had some incredibly amazing, deep conversations, and lots of fun ones too!
I love that I get to be Thomas’s mom. They bless me more than words could ever express.
Happy 18th Birthday, Sweet Child of Mine!!
**THROWBACK POST**
October 22 2015:
On our way to the Harvest Festival at the lodge. That was fun!
October 22 2013:
Congratulations to Emma Auriemma McKay on winning some awesome awards for her amazing artwork!! It was so heartwarming to see you Emma this past Friday …. and Susan too!! Miss you ladies! Thanks for the GREAT picture Emma! Hugs and Love to both y’all!
November 9 2023
My furry friend from EQuus Insight says, “Do the things. And do them with delusional confidence!”
Last week I spoke to a UNR class of undergraduate and graduate students. They are in a course about working with families, all in different programs (elementary education, psychology, speech pathology, social work, and special education). It’s a class that is intended to provide students with knowledge and practical tools concerning the history of parent advocacy, current issues with special education and general education systems, and empirical possibilities to reimagine how to better serve families raising children with disabilities. The goal of having parents as guest speakers is for students to learn directly from us and our experience.
It was incredibly fulfilling with my 30 minute time slot turning into an hour. Last night I received a message from the instructor that the students had referenced my presentation several times so she knows it hit multiple ways for them. I am someone who doesn’t fully see, or have it really soak in, the things that I do and say. I’m just doing and saying what comes naturally for me. Receiving feedback such as this, helps me to know I’m on the right track, and more importantly, that what I’ve said or done has been meaningful. Isn’t that all most of us want?
Thank you to everyone who has offered encouraging feedback throughout these past 20 or so years. I didn’t have as much confidence, and even less experience, when I began this parent advocate journey. That’s a different story these days. With experience and reaching the point of knowing what I have to say is meaningful, with a dose of “I don’t really care if it’s not, I’m saying and doing it anyway”; I have a solid foundation of confidence tethering me to this wild, wonderful, messy thing called life. Walk this way. This is The Way. 🖤🖤🖤