Category Archives: News and Events

She is On Fire – Go Lillian

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November 7 2023

She did it!!! After about 6 years, she finally had labs done! You on fire, gurl!

I found a place that does mobile draws, explained that Lillian has a needle phobia, a pediatric size body, hard to find veins, and a traumatic lab draw 6 years ago. They said they had the perfect person. And they do! Patrick Go is absolutely amazing, and he did a wonderful job! So relieved to have this done. There’ll be more after the GI visit in December. But at least we’ve begun!! Stomach ultrasound next week. 🎉🎉🎉

Throwback Post: Lillian and Camilla October 2012 Date Day

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**THROWBACK POST**

October 26 2012:

Date day with Lillian = desert first!!!

Date day lunch with Ms Lillian. It’s a French fry variety lunch!!!!

Next stop on our October Lillian n Camilla date. Using some of her birthday gift card from Kathy!!!

Happy Hour Adventures at the Romano Casa. Bwahahahaha!!!!! Dinner at the Romano Casa = Perfect end to the Camilla n Lillian Date.

Throwback Post: Enjoying the Little Things

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**THROWBACK POST**

October 27 2014:

He sure knows how to have fun! And he writes comments like this in Lillian’s “love note” tonight:

keep on working on brushing those teeth and I can understand you more every day

He is such a blessing and reminds me of things I have forgotten about this life.

We Ate Chili and Laughed and Had a Ton of Spooky Fun

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October 31 2023

Traditional Halloween chili with The Romano Duo. We laughed so much! Fun times! 😂👻🎃💀🤣

Throwback Post: Sweet Dream Spells With a Pirate Wench While Reading With the Tooth Fairy

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**THROWBACK POST**

October 27 2013:

Reading to Thomas and Lillian before bed, One game of UNO, one dance party, one Sweet Dream Fairy Spell … and I end this day grateful that I GET to do all of this! Gosh Darn, this stuff rocks! Celebrate Good Times, Come on … Let’s Celebrate … xoxo

_____________________________

October 27 2012:

Halloween Party 2012 ~ Camilla was a very sexy Pirate Wench! – Tele Raack

Books = Adventures & Happiness ….

October 27 2011:

We’re ready for the tooth fairy! Plus the other one is about to come out too!!

It Was a Zoom Dance Party

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November 1 2023

Lillian and I had fun at the annual Chromosome 18 Halloween Zoom Dance Party Monday afternoon. Lillian is at The Romano Duo’s place for a few days. So she took photos of me, and I took photos of her. 🖤😂🎶🤣🧡 Hell yes, to respite for all of us! 🎉😁🎉

Throwback Post: Whatever Happened to My Transylvania Twist

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**THROWBACK POST**

October 29 2013:

The Team TLC carving of the pumpkins followed by a dance party … “What ever happened to my Transylvania Twist?”

Seven Trains on Four Tracks

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October 23 2023

Actual conversation with myself:

I need to do this. Oh don’t forget about that. ‘Walks into the bathroom’ – Oh, crap. I forgot about doing this. ‘Walks into kitchen’ – Damn, I keep forgetting that. Then sees or hears a phrase and thinks that would make a good poem. Makes note of so as not to forget. Then looks outside and sees the amazing clouds and makes way outside for photo. Then enter a rabbit hole of researching college scholarships, genes and chromosomes, best sci-fi movies, and best fantasy novels.

Tries to keep all of these thoughts going at once until I can get to my calendar to make a note of each. Also, reminding myself to breathe and stay calm, and that I will get to all of it eventually. Once in the calendar, I breathe a sigh of relief as I eject that information. Whew! 🤣💀😂

Knowledgeable and Powerful

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October 15 2023

Can confirm.

And this one ties in with a poem I’m writing for the upcoming Spooky Slam Poetry event. I’ve never done slam. I’m terrified. But, if not now, when? I’ve decided to try things I want to try, letting fear serve as my fuel. 💥💋💥