News: Camilla Joins The Family Navigation Network – A Project of NCED

I have been offered and accepted a very part-time position with the Family Navigation Network (FNN); which is a project of the Nevada Center for Excellence in Disabilities‘ (NCED). NCED is a part of the University of Nevada, Reno.

I’ll be working about 10 hours a week, with the opportunity to work 20 hours a week. I just don’t see the 20 hours happening any time soon, though. I finally hit 10 hours last week. Ha! I’ve been with them for about a month now, just have not had the time to make a proper announcement.

Family Navigators help connect families with resources that they may not have known about; while at the same time collecting resources and information that we can share with families. So far I’ve spent much of my time onboarding, attending webinars (to learn about more resources, and the like), and have stepped into researching what type of information and resources Nevada families need.

When I come across resources I feel would be of benefit to my Chromosome 18 family, I make sure to share them in the 18p- facebook group as part of my volunteer coordinator role.

Here’s a description from the NCED website:

The Nevada Center for Excellence in Disabilities serves as Nevada’s University Center for Excellence in Developmental Disabilities (UCEDD). The UCEDDs were established and funded by the Developmental Disabilities Rights Assistance and Rights Act (DD Act). UCEDDs work to accomplish a shared vision that foresees a nation in which all Americans, including Americans with disabilities, participate fully in their communities. Independence, productivity and community inclusion are key components of this vision. The DD Act funds 67 Centers at universities in every state and territory.

And a description from the Family Navigation Network website:

Resources. Support. Navigation.

Located within the Nevada Center for Excellence in Disabilities, the Family Navigation Network is a place to find health care support and community resources for children and youth with special health care needs, their families and the professionals who serve them.

I’m excited to put my skills, knowledge, and heart to use helping other families. xoxo

See It. Share It. BE IT … Spread Love Everywhere You Go!

“Words of Alchemy”, published December 2019, is a free-verse poetry memoir covering the last 6 years of my life. The poetry of nature, the poetry of healing, the poetry of appreciation, the poetry of love, in one beautiful book.

Amazing news! My 20 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here

Wonderfully exciting news! My 16 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.


Latest News: Vacation Time

(Nevada Beach, Lake Tahoe – Photo by Camilla 2019)

This is a quick post to let you know that I will be on vacation from July 26th through August 9th.

I will be on vacation from my social media, and email during this time, too. If you contact me during this time, please keep this in mind. I have not taken a vacation from social media …. EVER! Well, since I began using it in 2007 or 2008.

With the current situation we will not be traveling anywhere, but I hope to take advantage of this amazing place we call home, to read, read, read, and just take some time to not feel like I need to post something, or feel like I need to engage with others.

There may be a few previously scheduled blog posts that publish during this time (if I get them scheduled before the 26th).

Thank you! – Camilla