Inspiring and Thought Provoking: D iz for Different Amazon Review

★★★★★ Camilla Downs has really written an exceptional book. She opens up about her own life so that she might truly help others find some insight into their own. I have had the privilege of belonging to a support group with her for children with chromosome 18 disorders and have found her posts there to be wonderfully supportive and hopeful and when I found out she wrote a book, I couldn’t wait to read it.

It was everything I thought it would be. As a mother to a four year old with special needs, it’ made me really think about my own life and relationship with my daughter. The one thing I have to say I took away from this book was the prevailing message throughout the book about “living in the moment’. Not letting outside distractions take away from what you’re doing or experiencing with your child or anyone else for that matter. It really hit home for me. How many times was I reading a book to my daughter and thinking about all kinds of other things or perhaps the tv was on in the background. I was reading the words but I wasn’t in the moment. I have become very conscious of that because of this book. I have had a tough time as of late with a lot of worries. I have a lot on my plate, but I now find myself sitting with my daughter and putting it all aside to really engage with her and with what we’re doing in that moment and it has made a huge impact. Learning to put aside all these distractions has made me more aware of her and even more in awe of what’s she’s learning and doing every day that I was before.

Thank you Camilla Downs for helping me to open my eyes. You have made an impact on my life and I’m sure the lives of many others. I am in the process of getting my degree in child development and I have now decided to focus on working with special needs families. You have inspired me to look into being certified as a special needs life coach. That is my ultimate goal. I would love to talk to you more about that sometime when I get closer to actually pursuing my certification. Thanks for all you do. You are an amazing woman, mother and spokesperson for so many. I wish you a long and prosperous career doing what you love. –Katelyn’s Mom – June 1, 2013

If you would like to write an Amazon review of D iz for Different go here (amazon affiliate link). It’s not necessary to have purchased the book through Amazon. If you have an Amazon account, you can write a review.

Allowing the Gift of a Situation

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“If you realize that all things change, there is nothing you will try to hold on to.” -Lao Tzu Team TLC stands at the helm of a new adventure. Change is upon us. Anyone who has read my book, “D iz … Continue reading →

Deeply Relaxing: Reiki Testimonial

“This was my first time experiencing Reiki and it was wonderful. I was so deeply relaxed and comfortable I was in and out of sleep! During my session with Camilla I even got a vision of a beautiful image I want to paint. Camilla had just the right colors and scents in the room too, catered just for me! I’ll definitely be doing this again in the near future. Please give her Reiki sessions a try, she’s got a gift. :)” – Natalie Gorden, Reno, Nevada – 8.30.13

In Remembrance and Celebration of Nikki Jones Luinstra: A Never Forgotten Promise

A Never Forgotten Promise Between Two Souls

(Nikki and I and her cat in the top picture and Nikki and I and our friend Ginger in the lower picture. This was my going away dinner before I moved.)

For my beautiful friend Nikki Luinstra (Robin Nicole Jones)  who is forever in her happy place now …. She LOVED the beach! We watched the movie Beaches together at about 19 years old and made a promise to one another that I was not able to fulfill in person, yet have done my best to fulfill in my imagination since she phoned me last month. 

Nikki left a voice mail on June 25, 2013 saying, “Camilla, my sister. I haven’t talked to you in forever. I really need to talk to you now. Call me. I love you.” I phoned her right back and it was the most out of body conversation I have ever had. My heart is so heavy that I was not able to go to her when she called me last month. She said, “Remember when we watched the movie Beaches? Remember what we said to each other? Will you be coming down here anytime soon?” She was calling to tell me good bye … She also told me she was worried about her family, her husband, Mark and her 3 daughters. I want her daughters, Shelby, Kelly and Marcy to KNOW that they will always have a friend and mentor in me. Should they ever need someone to listen or to offer advice who also knew their Mom …. I am forever here for them.

Although we did go on our own separate journeys that took us thousands of miles from each other, this was never forgotten. My wish is that my imagination was strong enough that it reached her and she felt as though we were sitting on the beach soaking it in during this last month. I know too that the next time I visit a beach, Nikki will be there to just say “Hey”.

We met when we were in high school at about 16 years old. We worked at the same grocery store, Jitney Jungle. We quickly became the best of friends. We spent so much time together and eventually coined ourselves as sisters since neither of us had a sister. I even called Nikki’s Mom, Peggy, my other mother. Nikki and I lived together for a time before I moved from Mississippi in 1990. She was indeed a great friend.

Nikki was a dedicated friend, Mom, Wife, Daughter, Sister, Aunt, Nurse … whatever role she had chosen to fulfill. Now she is an Angel and knowing her, she has dedicated herself to this like everything else in her life. Nikki’s ashes were taken to the beach she loved so dearly and scattered. Her body and soul are now free of the cancer that took her life. I wanted Nikki to have a forever in the digital world too so I wrote this article dedicated to her. Love you Nikki … Enjoy that eternal beach! xoxoxoxo

My wish is that this article inspires just the right person at just the right moment when he/she stumbles across it in this vast digital world. Further, my wish is that you know that a deep and true friendship spans distance and continues it’s strength with time, even when friends go months or even years without talking with one another. The bond created never weakens ….

Inspired Living: Be Inspired

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Sunset adventures. Team TLC went somewhere different tonight! Lillian did NOT want to get out of the car or climb up the gigantic rock with stone steps and no rail. I talked her into it with Thomas holding her other … Continue reading →

Amazing: Reiki Testimonial

“This was my first time experiencing Reiki. It was amazing! I felt so relaxed. It’s hard to describe, but I couldn’t tell where my body ended and the air began. I had been curious about Reiki but was waiting for the right person to give me my first Reiki experience. Camilla was that person. Looking forward to my next session.” J.R. – Reno, Nevada – 8.15.13

Inspired Living: Two Blessings

It got really quiet while I was cooking dinner tonight (8.19.13). I went outside looking for Thomas and Lillian and found them under this beautiful sky, sitting and reading together …. I’m so HappY and blessed I get to be their Mom!

Latest News: 20th Annual Chromosome 18 Registry Family Conference – Part 3

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(Thank you Steve Marshall for the picture of our sign!) 20th Annual Chromosome 18 Registry Family Conference News & Recognition Positive Exposure Research Updates Syndrome Breakout Groups Self Advocate/Sibling Mixer Moms’ Night Out Special Needs Planning Program Yoga Interactive Session … Continue reading →

Latest News: Trains, Planes and Automobiles: 2013 Chromosome 18 Conference – Part 2


(Team TLC at 30,000 feet up somewhere between Reno and Las Vegas)

Well, almost! Buses, Planes and Automobiles!

That’s how we got from Reno, Nevada to Savannah, Georgia for the 20th Annual Chromosome 18 Conference. Southwest Airlines does not fly into Savannah and the other airlines were triple the price to fly directly into Savannah. Southwest does fly into Jacksonville, Florida which is much closer but that was $300 more per person! I tried every combination I could think of with planes, trains and automobiles. Amtrak was crazy expensive! Even more than flying. Greyhound bus and a car rental were neck and neck from Atlanta to Savannah until you considered gas for the car. Here’s what we ended up with: SW Air from Reno to Atlanta. Greyhound bus from Atlanta to Savannah. Car (via a chromosome 18 friend) from the Savannah bus station to The Marriott! Then the exact same thing in reverse to get us back home again! Whew!


(Waiting at the Las Vegas airport to board our flight to Atlanta)

The Team TLC travel adventures to the 2013 Chromosome 18 Annual Conference in Savannah, Georgia began on Friday, July 26, 2013 with an 8:00 am flight from Reno to Atlanta with a stop in Las Vegas to change planes. This was pretty relaxed and fun for all of us. Just one small incident. Lillian spilled her whole cup of juice inside her travel bag on the airplane which was interesting to try and clean up with the little airplane napkins! It would have gone off without a hitch except the juice found it’s way inside of another little bag inside the big bag and “ruined” the special index cards Lillian had decorated for her friends, Katie Baker, Rebecca Parker and IM. She was so sad and upset!


(Thomas and Camilla at our motel in Atlanta)


(Team TLC at our motel in Atlanta)

We stayed in Atlanta for the night as the next leg of the adventure was a Greyhound bus ride from the Atlanta airport to Savannah. I figured we’d be too tired to ride the bus to Savannah that same night. We wouldn’t arrive in Savannah until about midnight. This is where the fun turns into a bit more work! Getting through a HUGE airport with bags and one kid who clings to my arm the whole time. Airports freak Lillian out. She has to have a hold of my arm the whole time! We cannot use any stairs, escalators or moving walkways. They are a not happening zone with Lillian. In hindsight, I feel we would have been just fine making the trip that night. I definitely learned a lot with this adventure y’all!


(Thomas and Lillian waiting for the bus at the Atlanta airport)


(Camilla waiting for the bus)

Made it to the motel via a shuttle bus provided by the hotel. We ate some dinner, went to bed and got back up pretty early to take the shuttle back to the airport. Greyhound picked us up about 8:30 am and we were Savannah bound via a 4 hour road trip! There were only single seats available and many people were asleep. So we didn’t get to sit together but were very close. Thomas was in front of me and Lillian was across from me. The really cool thing was that we had electrical outlets at our seats and free Wifi! Very neat!


(Waiting for the bus … It was about 30 minutes late arriving)


(Team TLC on the bus …. Atlanta to Savannah)

We made one 10 minute stop in Macon, Georgia. This is where the adventure took a notch up! One of the people who got on the bus in Macon was a young man in his 20’s or 30’s who was possibly intoxicated or high on something. He sat behind and across from me.  About 45 minutes before arriving to Savannah this young man decided to tell me about his autobiography he has written … handwritten ….. over 500 pages … and he has it with him. He pulls it out of his backpack and reads a little from the introduction as he tells me that we should all ask for help when we need it. He adds this book will make him a million dollars and he’s on his way to get it published. Throughout this he mentions several times that we should ask for help along the way in life. The book is about his struggles. I’m thinking that this is so interesting. Not his book. But that he’s written this book about his struggles and keeps repeating about asking for help. I was also thinking to myself, “Dude! I don’t think you are done with your struggles yet!” So, then he finally asks me for money. I tell him I have no money to give him and we are only on this trip because other people helped us.

He went back to his seat, then goes to the bathroom and lights up a cigarette! Well, didn’t take long for that smell to make it’s way up front. About 10 or 15 minutes later we took the next available exit, in the middle of no where, at a boarded up gas station so this young man could get kicked off the bus! That was an adventure for sure! Don’t get me wrong. I was not bothered by this event or this man. I feel we are all doing the best we can with where we are in our life. Perhaps he will be done with his struggles one day and perhaps not. Either way, his life is unfolding as it should.

Finally made our way to the bus station in Savannah. Our Chromosome 18 friend, Mark Sogard from North Carolina, picked us up. Made it to The Marriott about 2:15 on Saturday, July 27, 2013! YAY and WHEW!

Thomas was such a huge help on this trip. We still had brother/sister arguing happening …. yet, he helped me tremendously. Love that wise old soul in a little person’s body!!


(Team TLC after arriving at The Riverwalk Marriott in Savannah)

Our trip back home was the exact same in the reverse order. Our Chromosome 18 friend, John Baker from Arizona, gave us a ride to the bus station in Savannah. I was a mess getting us and our luggage out to the bus. The ride from Savannah to Atlanta was quiet and uneventful.

Except for an unpleasant experience with TSA at the Atlanta airport, the rest of the trip back home was great. The TSA agent wanted each of the kids to hand their ticket to her instead of me handing all 3 tickets to her. This confused them as we had not had to do this before … especially Lillian. The TSA agent then asked them questions which confused them even more! Some stranger asking them questions about their name and where they are going! Thomas told her we were going to Vegas! Huh? Poor kids! Of course she couldn’t understand Lillian. I told the agent Lillian had a speech impairment and she would not be able to understand her. So she went ahead and asked her even more questions. After that incident Thomas and I were finishing off our water before we made our way to security. This frustrated Lillian even more as she thought they were making us waste our water! Then the TSA agent at the scanner rushed both of them through.

That did it for Lillian. She was holding back the tears. I had to spend 10 minutes after we got our stuff together sitting on the bench just past security calming her down. The whole TSA experience was very upsetting for her.

All was well again by the time we got on the plane and headed for home ….

Something I learned: Don’t sit in the back of the bus!! You will smell scents you never wanted to smell and be prepared to encounter some interesting and colorful humans! AND Some TSA Agents + special needs kids = Frustration and Meltdown

Go here for the first installment and Part 1 of Team TLC 2013 Adventures to the 20th Annual Chromosome 18 Registry Family Conference.

Go here for the last installment and Part 3 of Team TLC 2013 Adventures to the 20th Annual Chromosome 18 Registry Family Conference.

Go here if you’d like to see more pictures of our adventure …

 

Latest News: Thank YOU – Team TLC 2013 Chromosome 18 Conference Fundraiser – Part 1

Team TLC returned from the Chromosome 18 Conference on Friday, August 2, 2013. It was a great and heart warming experience for all three of us.

First, and most importantly, I have overflowing gratitude for the people in our lives who took part in the Team TLC fundraiser to get all three of us to the 2013 Chromosome 18 Conference.

Without your support, love and kindness our trip would not have been possible. Some of you purchased custom created stretch bracelets from us and some of you chose to donate money towards the trip. Sending thanks, smiles, and warm hugs on wings of pure love to each and every one of you ….

Robert Downs
Tim Bishop
Frank & Patty Romano
Connie Wilson
Peg Flowe
Katie Sprister
O.C. Gillham
Kathy Borello
Suzanne Bean
Robin Mayfield
Roberta Verdun
Lauren Bradbury
Robin Kehoe
Loretta Bonilla
Cheryl Donlan
Deb Yocum
Nora Schaefer
Cassie Salsberry
Lillie Salsberry
Carolyn Smith
Cathy Diver
Lisa Glazier
Rachel Flower
Melanie Gorrell
Roxane Daigle
Alisha and Steve Peters
Sandra Ozment
Dawn Ward
Tony Hightower
Mackenzie Banta

In complete and open honesty I had chosen not to be attached to attending the conference this year. I would be happy if we attended the conference and I would be happy if we didn’t attend the conference. However, my two absolutely fabulous kids, Thomas and Lillian, had their heart set on it. I talked with them up until nearly a month before the conference about not being too attached to going.

Making the bracelets was Thomas’ idea. Once we began the fundraising and sharing on facebook, the response was so overwhelmingly positive that I saw an opportunity to help Thomas and Lillian experience and be a part of the unfolding and manifestation of what they desired.

It was extremely moving receiving such enthusiastic support from our friends and strangers alike. Especially with the support of some of our Chromosome 18 friends who would not be able to attend, yet chose to support our efforts to get to the conference.

Team TLC at the Reno/Tahoe Airport ready to leave for our 2013 Chromosome 18 Conference Adventure!

We had a great adventure traveling to and from the 20th Annual Chromosome 18 Conference. You can read about our adventure here.

Thank you, Thank you, Thank you …… With oceans of gratitude …. ♥

Go here for the second installment and Part 2 of Team TLC 2013 Adventures to the 20th Annual Chromosome 18 Registry Family Conference.

Go here for the last installment and Part 3 of Team TLC 2013 Adventures to the 20th Annual Chromosome 18 Registry Family Conference.

Go here if you’d like to see more pictures of our adventure …