After an extremely rough afternoon, what a blessing to receive a sweet, loving, kind, and generous message … Just the push I needed to bring on the sobbing so I could connect and release ….
When you have one with difficulties in the executive functions area, it is nearly impossible to suggest spur of the moment activities. In Lillian’s case a meltdown is going to happen 95% of the time.
Yet, I continue to try. We have a blu-ray Christmas movie to watch from the library as they had no regular DVD of this movie.
I figured we could watch it at the lodge in the theater as their equipment will play blu-ray. (I use a really old portable DVD player plugged into a projector for our movie watching as we don’t have a TV.)
I looked on the library website and saw we would have to return the movie on Wednesday so I suggested we head on over and watch it. Well, at the same time, I must have given my patience a vacation. And, invited every worry and concern that has been bothering me over the past three months.
Two kids having meltdowns, one mom having an outburst, and two hours later ….. We are still out of sorts … but this wonderful and generous message was exactly what my heart needed ….
Sharing for anyone else who is having an off day, anyone who gave their patience the day off, or anyone who invited worry and concerns to cloud their day … From one human to another; I share a loving, warm, heart hug with you … And say .. You are not alone. Be still. And know …. xoxo
I find when I am already in “Why me victim mode” and my thoughts are full of worries and concerns that having nothing to do with a current incident … That’s when I lose it. So … when not in that meltdown moment I practice mindfulness and meditation and walks in nature so that I can have a balanced and peaceful perspective most times. Yet, we are human, so that’s not going to happen every time … And … That. Is. Okay …. xoxo
I have felt incredibly out of sorts and in a huge fog lately. Along with some anxiety. I know when I feel anxiety it is usually due to something surfacing that it would be best for me to connect with so as to release. Sometimes I forget that, though, and resist …
Most times if I would quit trying to row the boat and just let that sweet little boat float through life, peace would be more consistent …. For, I fully believe that life knows what its doing and has my back …. xoxo
Camilla See It. Share It. BE IT … Spread Love Everywhere You Go!
“Words of Alchemy”, published December 2019, is a free-verse poetry memoir covering the last 6 years of my life. The poetry of nature, the poetry of healing, the poetry of appreciation, the poetry of love, in one beautiful book.
Amazing news! My 19 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” was published January 2018. Learn more and order here.
Wonderfully exciting news! My 15 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.
Anger is like a storm rising up from the bottom of your consciousness. When you feel it coming, turn your focus to your breath. ~Thich Nhat Hanh
I recently received the honor of having one of my articles accepted for publication by Elephant Journal. I was inspired a couple of months ago by blog posts which are letters openly written to others. For example, Dear Person at the Grocery Store, Dear Lady in the Bookstore, Dear Stressed Out Mom, and the like.
Upon seeing these I knew I was to write something like this. At that same time, I also knew I wanted to share something meaningful about the meltdowns that Lillian is experiencing. The next thing I knew, I was writing a letter to her meltdown. I was pouring my heart out to that meltdown. This is the result and this is what Elephant Journal published …
Meltdown (per Merriam-Webster) – an accident in which the core of a nuclear reactor melts and releases radiation, a very fast collapse or failure, a very fast loss of emotional self-control. (emphasis mine)
Mindfulness – (per Merriam-Webster) – the quality or state of being mindful, the practice of maintaining a nonjudgmental state of heightened or complete awareness of one’s thoughts, emotions, or experiences on a moment-to-moment basis; also such a state of awareness.
Dear Meltdowns, Welcome and Meet My Friend Mindfulness
Sometimes I’m able to sense when you’re lurking in the shadows. Sometimes I’m not. And you sneak up like a cat stalking its prey.
You penetrate the peace of an otherwise tranquil day like an earthquake suddenly rocking and rolling in the middle of a quiet night’s sleep. You are the complete opposite of fun and joy.
You are loud, aggressive, physically harmful, and verbally malicious. You lack compassion, empathy, and kindness. You take all actions and words personally.
What I want you to know is that I welcome you. Not like I’d welcome my best friend coming over for coffee and chatting. I welcome you like one later appreciates a grumpy relative during the holidays knowing that being around this person can help us to learn more about our own triggers.
You are helping us to know what emotions and situations Lillian has resistance to fully experiencing. You are the red flag that goes up as a warning that THIS is where she feels vulnerable.
So, I welcome you. I meet you with love.
When I am in a peaceful, mindful state, going with the flow of life, I handle you just as easily as a leaf floating in the wind. I choose not to accept your meltdown hook.
When I’m resisting life, choosing grumpiness, and having an off day, I accept the hook you’ve thrown out and jump right in with both feet. These are the times I learn more about myself.
Either way, one thing I know for sure is that you are not the true Lillian. The true Lillian is there, and you are simply acting as a buffer so she doesn’t have to experience the rawness of life. It is my hope that as I meet you with kindness and compassion, you see that it’s okay to move aside.
Lillian can handle the unexpected, the discomfort of not getting her desires, and the “letting go” of learning to be flexible. It’s okay to release your grip.
I will continue to meet you with a calm voice and compassion as often as possible, until the day you realize it’s okay to become dormant, slip into an eternal sleep, and allow a miracle – the miracle of Lillian fully experiencing emotions and going with the flow of life.
Camilla (Mom to Lillian)
Lillian has a rare genetic condition called 18p-. This means that she is missing the short arm of chromosome number 18 and it affects about 1 in 50,000. The main way this manifests for her is that she is speech impaired, and has balance and motor skill issues. Also, for the past year and a half she has struggled with experiencing anxiety and difficult emotions.
**LOVE OFFERING** If you find this content helpful, I invite you to toss a tip in the love offering bowl. With oceans of gratitude … Camilla ….
In July 2015, Lillian had the worst explosive meltdown we’ve ever experienced. We made a quick stop at the grocery store to get a few items.
As I paid for our items, Lillian caught up with me, and once I was finished, I could sense her energy shift. Apparently, there was a miscommunication between us about looking at more gluten free desserts.
This quickly led to a volcanic explosion for Lillian. Fortunately, I was close to the exit doors, so I made my way out and headed to the car with Lillian melting down behind me. I quickly got into the car and invited Lillian to do the same if she was going with me. She was not open to doing any of the mindfulness techniques we’ve been learning.
I decided to start making our way home even though she had not calmed down – not the best choice in that moment. She was scratching, pinching, and pulling my hair from behind.
I pulled the car over, turned to Lillian and screamed some ridiculously outrageous comments. I quickly realized I must get out of the car. We needed space between us as I was bleeding and in a great deal of pain from the scratches and she was a big hot mess.
Once out, I closed my eyes, took a few deep breaths, and asked to see the situation differently. Upon opening my eyes, I saw, shining up at me from the rock and dirt filled ground, a beautiful red jewel heart. There was my answer, a reminder to always respond with love.
At this point, Lillian was ready to do a calming, mindful technique and I requested that she do it on her own. She got out of the car, chose to pick up a couple of rocks and studied them. After a few minutes we got back into the car and drove home.
We’ve not had anything of that magnitude happen since and I am hopeful this was simply “one step backward” before more steps forward. When this happens, one of us must be fully present and mindful or things can escalate.
Lillian has been seeing a psychotherapist since April 2015. We are working on cognitive behavioral therapy with mindfulness training. Additionally, I work with her on physically feeling the emotions within her body.
She has made great progress. It’s slow going, yet I feel we are closer to the ultimate goal.
The miracle of Lillian truly experiencing negative emotions and the rawness of life without the buffer of a meltdown.
At some time or another it’s possible we’ve all experienced our own version of a meltdown. Mindfulness is a miraculous practice to bring into one’s life. Once we become practitioners of mindfulness, more often than not, we are able to remain calm and peaceful when we or our children experience the rawness of life.
With mindfulness we are able to tune into our body and notice the beginning signs of a meltdown; clenched jaw, increased heart rate, tight shoulders or neck, stomach pain.
At this point we can say or think to ourselves, “There is anger inside of me.” This is the opposite of thinking or saying, “I am angry.” These two statements have completely different meanings and will take one down different paths.
Once we acknowledge there is anger (or any other uncomfortable emotion) within us, we can then put our focus on how this physically feels in the body. Is it tight, rolling, moving from place to place?
Let’s be real here. This is absolutely not fun and can be extremely uncomfortable. Yet, if we stick with this practice, it will become more of a habit and eventually the uncomfortable emotion will release.
If we wish to help our children, special needs or not, in this area, we must first practice this for ourselves and model this to them. Why would they meet a meltdown in this way if they never see us do this?
Examples of mindfulness techniques used with Lillian and her sibling, Thomas:
Focusing attention on a favorite rock, gemstone, or crystal. Concentrating on how it feels, looks, smells, and sounds.
Breathe work. At times with no phrase and at times with different variations of phrases.
Focus on in and out breath.
Breathing in, I am calm. Breathing out, I am peaceful.
I am in control. I can handle this situation.
Guided 5 minute mindful exercises.
Relaxing each area of the body.
Focusing on different areas of the body.
Walks in nature to include focus on flowers, trees, birds, ducks, etc.
Thinking or saying a peace mantra, Om Shanti Om.
Taking turns describing in detail another family member (remembering to use non-judgmental words) and similar family exercises.
These techniques were learned by me during the past 18 years of reading, studying, and practicing the teachings of Thich Nhat Hahn, Louise Hay, Wayne Dyer, Eckhart Tolle, Marianne Williamson, Deepak Chopra, Lao Tzu, Pema Chodron, Raphael Cushnir, and The Dalai Lama.
In between monitoring the debut of the article yesterday, there was a meltdown. Lately they are brought on by disagreements with her sibling .. Thomas. So, as I sat sharing, responding, and getting the word out; my hands were stinging with fresh scratches.
I have faith that with the mindfulness exercises we practice, discussions of recognizing emotions, and time spent in nature; eventually Lillian will succeed in going with the flow and simply letting things go ..
I must share with you that when I received the email from elephant journal Sunday night, I panicked. A wave of anxiety and fear swept over me and I felt as if I was drowning in sadness. Thoughts of what others would think of these words straight from my heart weighed heavy on me.
I went to bed Sunday night connecting with these feelings, focusing on how they physically felt in my body. The feeling had subsided some by the time I got up the next morning. After an hour of meditation and a solo walk in the fresh snow, it had completely lifted and I was free to allow and receive joy. I felt it was important to share this with you.
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