August 18 2025
Posting this once more to be sure as many folks as possible see it:
Here’s the link for the FB live discussing the Clinical Dosage Map and an image of the first page of Lillian’s dosage map in the comments.
August 10 2025
From The Chromosome 18 Registry & Research Society: “Next Monday! Join us on August 18th at 6pm CT (US) to hear from our wonderful 18p- coordinator Camilla Downs. Camilla will be sharing about how she uses the Clinical Dosage Maps from the Clinical Research Center for her daughter Lillian. This will be live, so tune in to ask your questions to Camilla! 🩷” (This is LIVE on the C18 FB Page – 4:00pm PST) –
https://www.facebook.com/chromosome18Registry
