Throwback Post: Arriving Where We Started

**THROWBACK POST**

October 23 2012:

I hope to always be exploring and creating adventures y’all!

“We shall not cease from exploration, and the end of all our exploring will be to arrive where we started and know the place for the first time.” -T.S. Eliot

Happy 18th Birthday to Thomas

November 11 2023

It’s not until the 13th, but we had our Team TLC-Roman Duo Celebration today. We had pizza and wings and Thomas chose a chocolate covered neapolitan cheesecake. Delicious!!!

Happy 18th Birthday to this amazing, wonderful, love-filled child of mine.

My favorite memory with Thomas:

It’s impossible for me to choose just one memory. My favorite times with Thomas have been when we have our once-a-month date days, going for walks in different places, going out to eat, going to the library, and window shopping at the pet stores and bookstores. I cherish the memories of our bi-weekly library trips. We had so much fun, making ordinary events into adventures.

Here’s a memory that stands out. When Thomas was about 12-years-old, we were on a walk. It has recently rained and a worm was crossing the sidewalk. Thomas gently scooped the worm, moving them to the other side so they wouldn’t get squished by walkers.

Being Thomas’s mom has absolutely changed my life. I often hear people say that their kids changed their lives. When I say it, I mean, it absolutely freaking changed my life drastically. I held many judgments against others, some I was not even aware of. Having Thomas in my life, made me aware of this, and also helped me to have empathy and compassion for others.

My favorite thing about Thomas. I can’t possibly choose one. I love Thomas’s sense of humor. They make me laugh so much, and I have a great time when we engage in conversation. We have had some incredibly amazing, deep conversations, and lots of fun ones too!

I love that I get to be Thomas’s mom. They bless me more than words could ever express.
Happy 18th Birthday, Sweet Child of Mine!!

Throwback Post: Harvest Festival and Celebrating Friends

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October 22 2015:

On our way to the Harvest Festival at the lodge. That was fun!

October 22 2013:

Congratulations to Emma Auriemma McKay on winning some awesome awards for her amazing artwork!! It was so heartwarming to see you Emma this past Friday …. and Susan too!! Miss you ladies! Thanks for the GREAT picture Emma! Hugs and Love to both y’all!

Do the Things and Do Them With Delusional Confidence

November 9 2023

My furry friend from EQuus Insight says, “Do the things. And do them with delusional confidence!”

Last week I spoke to a UNR class of undergraduate and graduate students. They are in a course about working with families, all in different programs (elementary education, psychology, speech pathology, social work, and special education). It’s a class that is intended to provide students with knowledge and practical tools concerning the history of parent advocacy, current issues with special education and general education systems, and empirical possibilities to reimagine how to better serve families raising children with disabilities. The goal of having parents as guest speakers is for students to learn directly from us and our experience.

It was incredibly fulfilling with my 30 minute time slot turning into an hour. Last night I received a message from the instructor that the students had referenced my presentation several times so she knows it hit multiple ways for them. I am someone who doesn’t fully see, or have it really soak in, the things that I do and say. I’m just doing and saying what comes naturally for me. Receiving feedback such as this, helps me to know I’m on the right track, and more importantly, that what I’ve said or done has been meaningful. Isn’t that all most of us want?

Thank you to everyone who has offered encouraging feedback throughout these past 20 or so years. I didn’t have as much confidence, and even less experience, when I began this parent advocate journey. That’s a different story these days. With experience and reaching the point of knowing what I have to say is meaningful, with a dose of “I don’t really care if it’s not, I’m saying and doing it anyway”; I have a solid foundation of confidence tethering me to this wild, wonderful, messy thing called life. Walk this way. This is The Way. 🖤🖤🖤

 

She is On Fire – Go Lillian

November 7 2023

She did it!!! After about 6 years, she finally had labs done! You on fire, gurl!

I found a place that does mobile draws, explained that Lillian has a needle phobia, a pediatric size body, hard to find veins, and a traumatic lab draw 6 years ago. They said they had the perfect person. And they do! Patrick Go is absolutely amazing, and he did a wonderful job! So relieved to have this done. There’ll be more after the GI visit in December. But at least we’ve begun!! Stomach ultrasound next week. 🎉🎉🎉

Throwback Post: Lillian and Camilla October 2012 Date Day

**THROWBACK POST**

October 26 2012:

Date day with Lillian = desert first!!!

Date day lunch with Ms Lillian. It’s a French fry variety lunch!!!!

Next stop on our October Lillian n Camilla date. Using some of her birthday gift card from Kathy!!!

Happy Hour Adventures at the Romano Casa. Bwahahahaha!!!!! Dinner at the Romano Casa = Perfect end to the Camilla n Lillian Date.

Throwback Post: Enjoying the Little Things

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October 27 2014:

He sure knows how to have fun! And he writes comments like this in Lillian’s “love note” tonight:

keep on working on brushing those teeth and I can understand you more every day

He is such a blessing and reminds me of things I have forgotten about this life.

Throwback Post: Sweet Dream Spells With a Pirate Wench While Reading With the Tooth Fairy

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October 27 2013:

Reading to Thomas and Lillian before bed, One game of UNO, one dance party, one Sweet Dream Fairy Spell … and I end this day grateful that I GET to do all of this! Gosh Darn, this stuff rocks! Celebrate Good Times, Come on … Let’s Celebrate … xoxo

_____________________________

October 27 2012:

Halloween Party 2012 ~ Camilla was a very sexy Pirate Wench! – Tele Raack

Books = Adventures & Happiness ….

October 27 2011:

We’re ready for the tooth fairy! Plus the other one is about to come out too!!

It Was a Zoom Dance Party

November 1 2023

Lillian and I had fun at the annual Chromosome 18 Halloween Zoom Dance Party Monday afternoon. Lillian is at The Romano Duo’s place for a few days. So she took photos of me, and I took photos of her. 🖤😂🎶🤣🧡 Hell yes, to respite for all of us! 🎉😁🎉