Merry Christmas from Team TLC and The Romano Duo – 2023

Posted on January 10, 2024 by Camilla

December 25 2023

Merry Merry from Team TLC and The Romano Duo 🎉❤️🎄❤️🎉

The Family We Never Knew We Needed – The Chromosome 18 Registry

Posted on January 5, 2024 by Camilla

December 24 2023

I always love the Chromosome 18 card. Check out the quote on the back of this year’s card. ❤️💚❤️

“The journey from Lillian being diagnosed at 3-years-old to where we are now at 22-years-old would have been immeasurably more difficult and lonely if not for The Chromosome 18 Registry & Research Society. The Registry has blessed our entire family with critical information, research updates, hope, fun, friendships, and the family we never knew we needed.”

Loads of Impatience and Getting it Done

Posted on January 3, 2024 by Camilla

December 20 2023

That was a huge pain! Dryer belt is replaced. I cannot believe the one I removed was still working. It was full of cracks. 😱The dryer is so quiet now. 😂

There was tons of cussing, sweating, and loads of impatience. But, I got it done! 🤣

December INOVA Paint Night

Posted on December 30, 2023 by Camilla

December 15 2023

Paint night at INOVA. So much fun! I my neighbors!

Thomas Meets Seattle – Digipen Institute of Technology Preview Day

Posted on December 29, 2023 by Camilla

December 16 2023

Thomas Meets Seattle

A place of fresh air
Beauty
Good food

I thought I’d never return
It never truly felt like home.

Sixteen years of my life
Sixteen years of adventures
Of wildness, joy, sadness, laughter, betrayal and heartache.

Being here with you
My wonderful, thoughtful
Child of mine

Making fun and beautiful
Memories together

I’m grateful for you
Walking with me
Through this place I fled 17 years ago
This place that may
Become you’re home
At least for four years, anyway

I am thrilled
we got to have this experience together

I cannot wait to see you fly
Whether that’s here
Or somewhere else

I celebrate you
You are uniquely you
And that’s refreshing in today’s world

I overflow with gratitude
That I get to be your mom
That I get to experience your kind heart
Your fun personality
And I am so very deeply proud of you

December 2023

Last weekend Thomas and I traveled to Seattle. It was a fun and productive long weekend! This was part of Thomas’s 18th birthday gifts. A trip to Seattle for preview day at Digipen. We had lots of fun!

Plus, Lillian did a great job being on her own for three nights!! The security cameras worked great for me to check up on Lillian and Basil. It was a success for all us. ❤️🎉❤️