On Wednesday, I watched my daughter, Lillian, as she got off the school bus, struggling with her backpack and walking to her destination in the back of the school. My heart sank as I stood watching all the other kids bouncing around running and walking normally with their backpacks with not a struggle in sight. Tears welled in my eyes; it was just one of those days. She absolutely refuses to wear a backpack on her back and thus ends up carrying it by the little loop on the top. It’s almost as big as she is.
As I drove home, it seemed as if time stopped for about 15 seconds and I felt so completely and utterly alone. I chose to feel sorry for myself for a minute and welcome a wave of defeat ~ sorry that I was not blessed with a “typical” little girl. A little girl that a mother can share life’s little moments with, talk with, have an actual verbal conversation with, hug and snuggle with, watch grow and blossom like most other girls.
I and moms like me have a different life with our daughters. We watch them struggle with something as simple as carrying a backpack to class, struggle to speak and talk in a way that can be understood with mounting frustration because their little mind is overflowing with all the right words and phrases; but, the mouth, tongue and lips do not work as they should so we can understand. We watch them struggle to dress themselves, struggle to open things, cut things, play on the playground. We must listen to their complaints of tummy aches, this and that aches and not know why and add that to our list to try and figure out. We don’t have the typical “How’d your day go and what’dya do with your friends today honey” conversations? Ours are “How was your day today?” And we get a thumbs up or thumbs down. Conversation over.
Only a minute though . . . .
I have a beautiful daughter who shines like no other. She has a warm loving heart. AND she is one stubborn hard headed little lady. I am blessed beyond blessing that she is stubborn and hard headed. This means she keeps on trying and keeps on trying and doesn’t give up as quickly on whatever she is trying to accomplish. I have had moments with her that made my heart feel as if it would burst with happiness and joy. When a speech impaired child tells you for the first time “I Love You” and says “Momma” for the first time, it is a feeling like no other.
**LOVE OFFERING** If you find this content helpful, I invite you to toss a tip in the love offering bowl. With oceans of gratitude … Camilla ….
This beautiful little lady, who is a self proclaimed fairy, will and does touch the lives of whomever she encounters in such a beautiful way that cannot even be described. I am her mother for a reason and she my daughter for a reason. Lillian has a beautiful soul and had some lessons to teach me and will continue to teach me. She does at times help me to stay grounded. I find myself wanting and feeling I should be doing more for Lillian; but know that whatever I need to do will happen as it should and I should not force anything.
It is my belief that I need these 15 minutes of feeling sorry for myself and moments of defeat to enable me to come out on the other side stronger and more focused on the path I am on and headed towards. What about you? Do you feel moments such as these (for whatever reason) are needed and helpful?
Go here to read “A Moment of Defeat – Take Two” …
See It. Share It. BE IT … Spread Love Everywhere You Go!
Amazing news! My 16 year old daughter, Lillian Darnell’s debut book, “Where Would You Fly and Other Magical Stories” is published. Learn more and order here.
Wonderfully exciting news! My 12 year old son, Thomas Darnell‘s book, Biggest Little Photographer is published. Be inspired! Learn more and order here.
And my book published in 2012, D iz for Different – One Woman’s Journey to Acceptance; which reached #2 in the Self-Help Category and #1 in Special Needs Parenting on Amazon.
lovely Camilla. You’re right about it all. We have to feel the painful stuff every now and then to keep it in check. And in acknowledging that pain we again get to see all the wonderful things that having these lives and our children give us. It’s hard work but it makes us who we are, and for you that’s someone who shines as bright as the darling little girl you’re describing here. Huge hugs from me to you today x
Thanks Sara! I’m blessed and grateful to be connected with other Moms as beautiful, warm and loving as you to share in this journey. And I am determined to enjoy the journey I am on ~ No Matter What!! Great day to you across the ocean!!
You never know who’s reading your blogs! I was prompted by Kristy’s comment and read your beautiful entry. As our friend Cheri Hill says, “you just don’t know the whole story (about anyone)” and I have such empathy for you in your role. Our kids are our life, and that certainly holds true with me as it obviously does you. I fall asleep every night praying for the safety of my son, who is now 21. Two years ago he was diagnosed with Juvenile Diabetes, and like any disability, no one knows the truth until it lives in your own home. If we could take our kids’ disabilities from them and onto ourselves, we would. But the amount of silver linings grows each day as we see these kids and young people tackle something in which we are only familiar outwardly. It is so painful as a mother, yet the extent of joy our kids bring to us, I believe, reaches heights unimaginable! God blessed you with a noticeably high level to love and be loved, and that is priceless. I commend you for sharing such a personal, and touching story about your beautiful daughter. My nickname for my son, Luke, is “PC” for Precious Child.” Take care, it was nice to see you at Cheri’s party last weekend.
Hey Kathy! Well, I’m glad Kristy’s comment got you over here and I’m blessed to be on the receiving end of anything Cheri says! You have contributed so much with your comment and I thank you so dang much for taking the time to write such a thoughtful and loving response. Love your nickname for your son! If I call Lillian honey, dear, sweetheart, pumpkin etc, she asys “My name is Lillian and I’m a fairy princess!” Well, that just says it all! Thanks again Kathy ~ ya just never know who will be reading these things . . . .
What a beautiful blog. I love how you share your feelings! We cannot answer the why about many things in life but we can experience the journey – good, bad, hard, joyful. My sister has a child that is Autistic and I am amazed everyday with her Mothering spirit. I know, though, that she has thoughts she does not want to share…maybe afraid to share. My hope and prayer is women with your experience will come together and be a support, a safe place, and a place to share your victories. Victories are not as sweet without the struggles before them. Thank you for your courage and your calling to do this. Please keep it up.
It is up to the rest of us to share it with those who need to hear it.
Thank you so much DeDe! Your support means a GREAT deal to me. I absolutely will keep it up! Wild horses couldn’t stop me now! Attending the Chromosome 18 Conference and the eWomenNetwork Conference last week solidified for me what’s in my heart and where I’m headed. I’m one tenacious gal and am now more focused than ever before. Thanks again for our wonderful conversation and connection at the eWomenNetwork conference. I have a special blog post upcoming just for you and your family! Stay tuned and here comes the Turning Views Foundation and the Different iz Good movement!
I wrote a very similar post as this just a couple weeks ago on my blog. It is so nice to identify with other moms that “know”…. because without that, we might feel guilty for thoughts like this, when we absolutely should NOT. How can we not wonder at times what life might have been like for our sweeties if their chromosomes had come in complete form?
Love how you wrote this, and Lillian is amazing, and I’m glad she has a momma that sees all the potential she possesses!
Thank you Alisha . . . can’t wait to get over there and read your post. Yes, wonder and compare . . . I think a bit of that is healthy as long as we don’t dwell on it or get stuck there. I truly believe when we do this we come out on the other side with even more acceptance and peace. And your little Em is blessed to have you also!! 🙂
We all have minutes when we are vulnerable and feel like you did seeing Lillian struggle. Thank you for sharing your human”ness” with us. I was beginning to think that you were superhuman 😉 I know how it feels to want to be able to understand and just talk to Luke like I can with Maggie. But the bond we share without saying a thing is also like no other 😉 Love ya’ll!
Thank you Mary Clare! Superhuman I am NOT! Hahaha! The responses I’m receiving from this have opened my eyes and let me know that I should share more moments like this. I absolutely have these moments . . . it’s just that over these past 10 years I’ve learned what works for me in being with these moments and coming out the other side a better person. Love and Hugs!
You and Lillian are the luckiest two people I know, and with Thomas to support you both, you can’t help but win in your every endeavors.
Your story is an inspiration to me when I feel that I have taken too big a bite of cake. I continue to chew and swallow and am rewarded by the appreciation of those whose comforts I care for in my business.
Ours is an every changing world, and, just as the technologies of the phones you work with for the voices of the children change, I am constantly reminded that when the music changes, we must change our dance.
Keep on dancing, Camilla. You are in perfect tune to the music.
Hey Marilynn! What a beautiful and kind comment . . . means a GREAT deal to me! I LOVE dancing and one thing I’m good at is changing my moves when the tune changes. Dancing’s good for the soul, as change can be sometimes too. Hope you have a wonderful week Marilynn and thank you for stopping by . . .
What a good read at a perfect time. Today after Abrieanna’s therapy I felt exactly this way today. I think you just spoke the words of many hearts! Hugs!! Stacey
Thank you Stacey! I’m so HappY I re-posted this at just the right time for YOU!! Big hugs back to you and Abrieanna!