In July we attended the 2019 Chromosome 18 Family Conference in Colorado Springs, Colorado. It was the 4th time since 2008 that I had driven to the conference. I finally learned my limits with this drive. In this case, the … Continue reading
We need your help! Last minute fund raising for Team TLC’s attendance at the 2017 Chromosome 18 Family Conference in Naperville, Illinois from July 12th – July 15th. Fortunately, we have a sponsor who has loaned us money for our … Continue reading
My 14 year old daughter, Lillian, has a genetic deletion called 18p-. She is missing the short arm of her 18th chromosome. Fortunately, there is an organization called The Chromosome 18 Registry & Research Society. They’ve created a portal for … Continue reading
(Thank you Steve Marshall for the picture of our sign!) 20th Annual Chromosome 18 Registry Family Conference News & Recognition Positive Exposure Research Updates Syndrome Breakout Groups Self Advocate/Sibling Mixer Moms’ Night Out Special Needs Planning Program Yoga Interactive Session … Continue reading
(Team TLC at 30,000 feet up somewhere between Reno and Las Vegas) Well, almost! Buses, Planes and Automobiles! That’s how we got from Reno, Nevada to Savannah, Georgia for the 20th Annual Chromosome 18 Conference. Southwest Airlines does not fly … Continue reading
Team TLC returned from the Chromosome 18 Conference on Friday, August 2, 2013. It was a great and heart warming experience for all three of us. First, and most importantly, I have overflowing gratitude for the people in our lives … Continue reading
Why does this matter so much? I’ve been carrying on a great deal about the upcoming Chromosome 18 Conference this July in Savannah, Georgia, thought I’d take a minute to touch on why this is so important to us. A … Continue reading
Another summer and another Chromosome 18 Conference has come to an end. Another journey of adventures with crazy luggage, stairs, peaceful strolls along the Riverwalk, laughter, tears and …. magical moments. A journey to a place where not everyone knows … Continue reading
**THROWBACK POST** (Cloud Angel – Taken by me during a 2016 or 2017 walk) August 25 2017 Friday, August 25, 2017, was the day “lightning” struck my heart. It was intense and was the culmination of a month long journey … Continue reading
**THROWBACK POST** (Team TLC – July 2014) Written in 2014 and 2015 November 2020 Note – This writing does not flow. It appears I came back to this over several months in 2014 and 2015 adding my thoughts. I’ve left … Continue reading