In July we attended the 2019 Chromosome 18 Family Conference in Colorado Springs, Colorado. It was the 4th time since 2008 that I had driven to the conference. I finally learned my limits with this drive. In this case, the … Continue reading
We need your help! Last minute fund raising for Team TLC’s attendance at the 2017 Chromosome 18 Family Conference in Naperville, Illinois from July 12th – July 15th. Fortunately, we have a sponsor who has loaned us money for our … Continue reading
My 14 year old daughter, Lillian, has a genetic deletion called 18p-. She is missing the short arm of her 18th chromosome. Fortunately, there is an organization called The Chromosome 18 Registry & Research Society. They’ve created a portal for … Continue reading
(Thank you Steve Marshall for the picture of our sign!) 20th Annual Chromosome 18 Registry Family Conference News & Recognition Positive Exposure Research Updates Syndrome Breakout Groups Self Advocate/Sibling Mixer Moms’ Night Out Special Needs Planning Program Yoga Interactive Session … Continue reading
(Team TLC at 30,000 feet up somewhere between Reno and Las Vegas) Well, almost! Buses, Planes and Automobiles! That’s how we got from Reno, Nevada to Savannah, Georgia for the 20th Annual Chromosome 18 Conference. Southwest Airlines does not fly … Continue reading
Team TLC returned from the Chromosome 18 Conference on Friday, August 2, 2013. It was a great and heart warming experience for all three of us. First, and most importantly, I have overflowing gratitude for the people in our lives … Continue reading
Why does this matter so much? I’ve been carrying on a great deal about the upcoming Chromosome 18 Conference this July in Savannah, Georgia, thought I’d take a minute to touch on why this is so important to us. A … Continue reading
Another summer and another Chromosome 18 Conference has come to an end. Another journey of adventures with crazy luggage, stairs, peaceful strolls along the Riverwalk, laughter, tears and …. magical moments. A journey to a place where not everyone knows … Continue reading
On February 26, 2022 I turned 52 years old. I seem to be behind in many non-urgent tasks these days. My body decided to get my attention once I hit 50, along with being extremely exhausted. I’ve had my hands … Continue reading
**Throwback to 2018 or 2019 when a fellow author asked me about the endorsements I received for my first book, and for Lillian’s book.** For my 1st book published in 2012 I received an endorsement/book blurb from Julie Ziglar (Zig … Continue reading